Rare Disease Day

imageHappy February 29th! I won’t be able to say that until February 29, 2020. We are currently living in a day that won’t exist next year.

In addition to today being a Leap Day, it’s Rare Disease Day! So, Happy Rare Disease Day! That might sound awful, but I’m in this group so I have a license to celebrate as I please! This day isn’t for celebrating the existence of these diseases. It’s for celebrating everything that patients have overcome, medical innovations, and everything that is still to come. This year’s “global theme, ‘Patient Voice,’ recognizes the crucial role that patients play in voicing their needs and in instigating change that improves their lives and the lives of their families and carers.”


While some of the symptoms of these diseases can be seen and others are hidden, anyone with a disease, rare or not, deserves to have their voice heard. We are not our struggles. We are not our diseases. We are not our limitations. We are what we decide to do with them.

Rare Disease Day Logo


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